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NIghtWare Review Part 3 — In the Hope This Gets Read Somewhere

Maybe this device will help some people, maybe not. But it should be better known. Problem is, your posts go nowhere unless you pay to advertise them. Or, pay in another way with your time. That means spending every day promoting on every social media platforms. There isn’t any other way.

NB: My psychiatrists (and all of the medical people I have dealt with) our obsessed with knowing how much sleep I am getting. How many hours? It doesn’t matter! Not if you go to sleep three or four times a day and have rotten, disturbing sleep each time. Never refreshing, never feel good sleep. The quality of sleep is what’s most important but they don’t want to assess that because there is nothing they can do about it and because they don’t want to admit that.

NightWare Review – Part One (internal link)

NightWare Review – Part Two (internal link)

NightWare Review – Part Four (internal link)

NightWare Review – Part Five – Final (internal link)

My first suicide attempt (internal link)

ROUGH, UNEDITED TRANSCRIPT BELOW

Hi, this is Thomas Farley again about talking about the new NightWare™ system. This is the third video — we are at November 10, 2021. I’m I am seeing less visual disturbances, less crippling, violent imagery.

[00:00:26.390]
It’s difficult for me to tell because if this is a reduction because sometimes I’ll have two or three nightmares in a night, sometimes only two or three in a week, and then they disappear for a while. They always come back. I’m still waking up scared, though, from things I can’t recall. I check my heart rate. It doesn’t register as anything but normal.

[00:00:52.970]
I continue to get sound offs that are from either going to the bathroom, moving around in bed or actually just lying in bed, staring ahead, thinking about things. I’m still getting alerting. I think it’s not learning yet on many things, and for all I know, some of this is spontaneous remission or whatever they call it. I continue to go forward. On Friday, I have a psychiatrist meeting.

[00:01:21.950]
She’s going to try to go through the data. I’m averaging 6.4 hours of sleep, so at least it’s keeping track of that. So I will continue with this. I’m just disturbed that it’s not learning.

[00:01:40.850]
It shows these interventions on a graph, but with the number of false alerts, I don’t have the confidence to say what is happening right now.

[00:01:56.130]
So we’ll proceed and at least I’m working on something right. And if you’re having sufferers again, this is my send off to you. I really hope that you have a good night and that you sleep well. I really hope that for you and that you find some peace. Good luck.

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Uncategorized

NightWare™ Review Part Three

NB: My psychiatrists (and all of the medical people I have dealt with) our obsessed with knowing how much sleep I am getting. How many hours? It doesn’t matter! Not if you go to sleep three or four times a day and have rotten, disturbing sleep each time. Never refreshing, never feel good sleep. The quality of sleep is what’s most important but they don’t want to assess that because there is nothing they can do about it and because they don’t want to admit that.

NightWare Review – Part One (internal link)

NightWare Review – Part Two (internal link)

NightWare Review – Part Four (internal link)

NightWare Review – Part Five – Final (internal link)

My first suicide attempt (internal link)

ROUGH, UNEDITED TRANSCRIPT BELOW

Hi, this is Thomas Farley again about talking about the new NightWare™ system. This is the third video — we are at November 10, 2021. I’m I am seeing less visual disturbances, less crippling, violent imagery.

[00:00:26.390]
It’s difficult for me to tell because if this is a reduction because sometimes I’ll have two or three nightmares in a night, sometimes only two or three in a week, and then they disappear for a while. They always come back. I’m still waking up scared, though, from things I can’t recall. I check my heart rate. It doesn’t register as anything but normal.

[00:00:52.970]
I continue to get sound offs that are from either going to the bathroom, moving around in bed or actually just lying in bed, staring ahead, thinking about things. I’m still getting alerting. I think it’s not learning yet on many things, and for all I know, some of this is spontaneous remission or whatever they call it. I continue to go forward. On Friday, I have a psychiatrist meeting.

[00:01:21.950]
She’s going to try to go through the data. I’m averaging 6.4 hours of sleep, so at least it’s keeping track of that. So I will continue with this. I’m just disturbed that it’s not learning.

[00:01:40.850]
It shows these interventions on a graph, but with the number of false alerts, I don’t have the confidence to say what is happening right now.

[00:01:56.130]
So we’ll proceed and at least I’m working on something right. And if you’re having sufferers again, this is my send off to you. I really hope that you have a good night and that you sleep well. I really hope that for you and that you find some peace. Good luck.

Categories
Uncategorized

NightWare Review: My First Ten Days with NightWare

November 4, 2021

A NightWare™ review. I will try to produce a rough transcript of this video tonight.

My nightmares started with a traumatic incident that happened in 1988. I did not see the event in person.

Looking back at thirty plus years of treatment for these on and off nightmares, I’m convinced that trauma broke my brain. That break now lets in the incredible daytime anxiety I have felt since the third grade into the nighttime.

I can’t do avoidance therapy when I am asleep. My anxiety finds me defenseless against all of the mindless fears and frights that I have and turns them into attacks with these nightmares.

No, addressing my anxiety has not stopped the nightmares. Like you, I have tried everything including ECT. I am now out of options.

Until later — I sincerely wish you peace and a quiet mind.

NightWare Review – Part Two (internal link)

NightWare Review – Part Three (internal link)

NightWare Review – Part Four (internal link)

NightWare Review – Part Five – Final (internal link)

My first suicide attempt (internal link)

ROUGH, UNEDITED TRANSCRIPT OF THE VIDEO

[00:00:08.750]
Hi. My name is Thomas Farley, and I have been a nightmare sufferer since October 1019 88. If you are suffering nightmares, I simply do hope for the best for you. This is a new FDA approved treatment system for reducing, possibly eliminating nightmares called Night Ware. W-A-R-E.

[00:00:46.310]
I’ve had it for about ten days, so anything I say in the next ten minutes is subject to change, but these are my first impressions. I’m really glad that there is a new treatment out there. I wish the developers well, first things first. This is about $7,000. As it sits.

[00:01:10.430]
You get my insurance won’t pay for it. The majority of insurance carriers will not and they’re working on that. But right now you’re out of pocket. I have always been out of pocket with my psychiatric care. I never can get seen often enough for it to do any good.

[00:01:31.010]
So you have just charging cables, especially provisioned dedicated iphone that works with specially provisioned Apple Watch. If you’re not familiar and what it does is it monitors your heart rate, your movement, and when it hits certain parameters within this algorithm they’ve developed, then it will tap you on the wrist to try to interrupt that violent nightmare, that event that you’re experiencing. If you’re not familiar with an Apple watch, this is my personal Apple watch, and it actually is electromechanical. These little dots here actually can tap you on the inside of the wrist when you have it on.

[00:02:34.170]
So that let’s say you’re driving and you are using Google Maps and you’re getting instructions on your iphone.

[00:02:45.870]
Your iphone will communicate to your watch. So that is a left turn is coming up. You’ll get a tapping produced by the watch on your wrist. The phone is communicating with the watch, and it’s a physical sensation. It can be significant.

[00:03:09.910]
I think the main thing is that I wasn’t really that well informed at all about the device. The major limitation for me right now, it isn’t going to be fixed until the future. And I hope around in the future is that it does not start, it will not start an intervention. It will not start this tapping to disrupt a nightmare within 30 minutes of going to sleep. And I wish I had known that I would have tried it anyway, but I can have a nightmare within well, as soon as my head hits the pillow and I’m sure there’s thousands or hundreds of thousands of other people.

[00:04:00.810]
So I never envisioned the idea that a medical device could be hooked up to you. Essentially, you could start the medical device and it wouldn’t start recording until or helping for 30 minutes, and it won’t.

[00:04:23.590]
Yeah, any reduction later on in the night. But here’s a problem with that in that if you turn off the watch, say in 2 hours, if you have a really ragged sleep cycle, you’re getting 30 minutes. Here an hour and a half here then you got to walk around for 3 hours each time you turn it off and then turn it back on. Each time you turn it on, you’re locked into this 30 minutes of no help coming whatsoever ever period. So best to keep it on.

[00:05:00.730]
I would say the entire night and then let the what they call machine learning figure it all out.

[00:05:14.150]
The literature and what I was told on the phone kind of contradict each other, and in all cases, there’s a lack of information of the gritty details you want, and my camera instruction manuals are more detailed than this. Why this is important is because I want to have the device work for me as well as it can. And to do that, I want to understand it. I know I’m going to have to be going back and forth with my psychiatrist. I was keeping a sleep log of all of these false positives that were being triggered, and apparently the sleep blog doesn’t matter at all.

[00:06:05.610]
It’s learning on its own. And maybe I can get into the details of some of the emails that he sent me, but that lack of detail is especially telling because they don’t have any customer support at night or on weekends when we’re all up having our nightmares. So more information is always better. And I don’t know why the documentation isn’t put up online, and I really hope that they do. And it would say endless emails back and forth with them as well as telephone calls trying to figure out why did this happen?

[00:06:44.910]
Why did that happen? For example, with that 30 minutes window of no interventions possible, normally, that information, the event will be recorded on their servers, but not necessarily shown in the graphs that you see or are routinely sent to the psychiatrist, they have to be apparently singled out somehow for recollection. I’m still working through this, but again, I think that’s enough for right now.

[00:07:27.610]
Okay, so $7,000 and of course, if it’s life or death for you, I don’t know what to say, and those 1st 30 minutes won’t ever get you an intervention. So with that, I will try to make some more videos as things go along as I learn more. And I really wish the developers will.