November 4, 2021
A NightWare™ review. I will try to produce a rough transcript of this video tonight.
My nightmares started with a traumatic incident that happened in 1988. I did not see the event in person.
Looking back at thirty plus years of treatment for these on and off nightmares, I’m convinced that trauma broke my brain. That break now lets in the incredible daytime anxiety I have felt since the third grade into the nighttime.
I can’t do avoidance therapy when I am asleep. My anxiety finds me defenseless against all of the mindless fears and frights that I have and turns them into attacks with these nightmares.
No, addressing my anxiety has not stopped the nightmares. Like you, I have tried everything including ECT. I am now out of options.
Until later — I sincerely wish you peace and a quiet mind.
NightWare Review – Part Two (internal link)
NightWare Review – Part Three (internal link)
NightWare Review – Part Four (internal link)
NightWare Review – Part Five – Final (internal link)
My first suicide attempt (internal link)
ROUGH, UNEDITED TRANSCRIPT OF THE VIDEO
Hi. My name is Thomas Farley, and I have been a nightmare sufferer since October 1019 88. If you are suffering nightmares, I simply do hope for the best for you. This is a new FDA approved treatment system for reducing, possibly eliminating nightmares called Night Ware. W-A-R-E.
I’ve had it for about ten days, so anything I say in the next ten minutes is subject to change, but these are my first impressions. I’m really glad that there is a new treatment out there. I wish the developers well, first things first. This is about $7,000. As it sits.
You get my insurance won’t pay for it. The majority of insurance carriers will not and they’re working on that. But right now you’re out of pocket. I have always been out of pocket with my psychiatric care. I never can get seen often enough for it to do any good.
So you have just charging cables, especially provisioned dedicated iphone that works with specially provisioned Apple Watch. If you’re not familiar and what it does is it monitors your heart rate, your movement, and when it hits certain parameters within this algorithm they’ve developed, then it will tap you on the wrist to try to interrupt that violent nightmare, that event that you’re experiencing. If you’re not familiar with an Apple watch, this is my personal Apple watch, and it actually is electromechanical. These little dots here actually can tap you on the inside of the wrist when you have it on.
So that let’s say you’re driving and you are using Google Maps and you’re getting instructions on your iphone.
Your iphone will communicate to your watch. So that is a left turn is coming up. You’ll get a tapping produced by the watch on your wrist. The phone is communicating with the watch, and it’s a physical sensation. It can be significant.
I think the main thing is that I wasn’t really that well informed at all about the device. The major limitation for me right now, it isn’t going to be fixed until the future. And I hope around in the future is that it does not start, it will not start an intervention. It will not start this tapping to disrupt a nightmare within 30 minutes of going to sleep. And I wish I had known that I would have tried it anyway, but I can have a nightmare within well, as soon as my head hits the pillow and I’m sure there’s thousands or hundreds of thousands of other people.
So I never envisioned the idea that a medical device could be hooked up to you. Essentially, you could start the medical device and it wouldn’t start recording until or helping for 30 minutes, and it won’t.
Yeah, any reduction later on in the night. But here’s a problem with that in that if you turn off the watch, say in 2 hours, if you have a really ragged sleep cycle, you’re getting 30 minutes. Here an hour and a half here then you got to walk around for 3 hours each time you turn it off and then turn it back on. Each time you turn it on, you’re locked into this 30 minutes of no help coming whatsoever ever period. So best to keep it on.
I would say the entire night and then let the what they call machine learning figure it all out.
The literature and what I was told on the phone kind of contradict each other, and in all cases, there’s a lack of information of the gritty details you want, and my camera instruction manuals are more detailed than this. Why this is important is because I want to have the device work for me as well as it can. And to do that, I want to understand it. I know I’m going to have to be going back and forth with my psychiatrist. I was keeping a sleep log of all of these false positives that were being triggered, and apparently the sleep blog doesn’t matter at all.
It’s learning on its own. And maybe I can get into the details of some of the emails that he sent me, but that lack of detail is especially telling because they don’t have any customer support at night or on weekends when we’re all up having our nightmares. So more information is always better. And I don’t know why the documentation isn’t put up online, and I really hope that they do. And it would say endless emails back and forth with them as well as telephone calls trying to figure out why did this happen?
Why did that happen? For example, with that 30 minutes window of no interventions possible, normally, that information, the event will be recorded on their servers, but not necessarily shown in the graphs that you see or are routinely sent to the psychiatrist, they have to be apparently singled out somehow for recollection. I’m still working through this, but again, I think that’s enough for right now.
Okay, so $7,000 and of course, if it’s life or death for you, I don’t know what to say, and those 1st 30 minutes won’t ever get you an intervention. So with that, I will try to make some more videos as things go along as I learn more. And I really wish the developers will.