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And So it Goes

Speaker 1
You.

Speaker 1
Hello, aloha and mahalo. It is Monday, September 11, day of remembrance for all of us.

Speaker 1
My name is Thomas Farley, F-A-R-L-E-Y-I have a friend who is is dying and he has been dying for many years, but it is certainly the end of the line.

Speaker 1
It will be the end of the line very soon for him, it seems, unless there’s some miraculous intervention from beyond science.

Speaker 1
I and he’s a good man. He doesn’t deserve to die, die poorly like this. I would not trade places with him. I envy him, though, in a way, with the enormous amount of resources that he’s been able to get to apply to his condition. He has a physical disease.

Speaker 1
He has a number of things wrong with them, but they are in the end, all physical.

Speaker 1
He’s had good insurance with Kaiser and I’m sure some of his own money. Similarly, I’ve had good insurance plans and money and I’m actually paid out of pocket for nearly all of my mental health treatment because compared with physical diseases, you cannot get seen by a doctor routinely enough to do any good in mental health. For a psychiatrist. Well, he has Kaiser. I think under Kaiser, probably you wouldn’t be able to see a doctor psychiatrist more than once every couple of months.

Speaker 1
Instead, you’re kicked down to therapists and technicians. So I’ve always paid out of pocket for regular psychiatric treatment.

Speaker 1
So that’s one big difference between mental health and physical health. Another is that routinely, for years now, most of the major insurance companies have provided a 24 hours nurse talk line so that you can talk to a nurse at any time of day except that. And I’ve talked to these nurses on these health lines before. They say they’ve never, ever had a psych nurse assigned to one of these 24 hours help lines. They could have a psych nurse, a telephone line in addition to the physical, the regular RNS.

Speaker 1
They could have that. These groups, Intermountain, Southwest, Kaiser, multibillion dollar corporations, they could pay for a 24 hours psych nurse telephone line so he wouldn’t wind up at the emergency room or some other place victim of suicide. But they don’t because mental health does not exist for these people. They talk about these institutions, talk about the rising rate of suicide, and isn’t that awful? But they won’t fund for it.

Speaker 1
They will not fund for it. They will instead give out some pity, some false pity and give some money to other groups, other agencies that are working on the problem, but they themselves don’t participate. And in the last few years, we’ve all seen how they want to really focus. They really want to throw everybody into two categories that of depression or anxiety. And if you’re not in that category, then good luck to you.

Speaker 1
I don’t want to dwell on my particular problem, although I’ll just say that it’s severe insomnia and nightmares and yeah, you hear about research, say, into PTSD and related, but it’s not really in my opinion. And I’ve been almost become a professional consultant on this subject since I so much want to get better. And I’ve tried everything. So I’ve become sort of an expert on what’s current, and I’ve done everything, including electroshock, or ECT as it’s politely called. Electroconvulsive therapy didn’t work for me, paid for all that out of pocket.

Speaker 1
Physical diseases, especially the physical diseases that happen to a lot of people, that Big Pharma has a market for. Those seem hopeful. As far as research getting spent, I know there’s some incurable, seemingly incurable problems like autism, and so there’s just major diseases, although autism goes to great deal of mental health fields, so it’s inherently not going to see the amount of research or funding to begin with. My friend has got all of these resources now available to him as far as end of life treatments and hospice, just like my parents had hospice and people willing to help stepping in. And there’s nothing for end of life, for mental health problems.

Speaker 1
My condition is not livable, and all I get in a response as far as end of life is that it can’t be that bad.

Speaker 1
And I sometimes say, yeah, you’re right, it’s not that bad. It’s a hell of a lot worse. You live with this, you live with this. But it’s a mental health problem that they can’t capture with a microscope or a thermometer going up or down, or blood pressure they can measure or blood they can sample. They just have to take the word of the patient, and our word doesn’t mean a damn thing.

Speaker 1
And I feel for people with mental health problems that are not as articulate or verbal as I am, that can’t express themselves or they express the hell they’re going through. They really have. That just I can’t imagine the misery funding needs to be addressed for my friend. There’s all sorts of patient advocates available for him. He’s actually had genetic engineering things done for him at Stanford Hospital.

Speaker 1
There’s been housing available for family and relatives nearby, just on and on and on. And I am glad that he’s had that care. It’s extended his life for many, many years. It’s just there is no equivalent in mental health for this. And it just devalue you.

Speaker 1
It devalues a person over and over and over again. You’re not worth it. And if you want something done, you got to pay for it yourself, because we can’t see it, so we don’t think it’s a problem. I’ll give you a simple example of how much I often have needed a patient advocate to deal with people just on the phone, for example. One of the things that really induces my nightmares is being a mean person and having to argue endlessly.

Speaker 1
And if anybody’s dealt with any customer support, any healthcare organization over the last many years, you’ll know that it is impossible sometimes to get across what you’re trying to say to a person that keeps falling back on a script will not transfer you to a supervisor about the websites and email addresses that they hand out that don’t work, telephone numbers they never call to make sure that they actually work. It just goes on and on. Well, that all forces me to get service, forces me to be a mean person with these people. And I don’t want to be a mean person. It’s toxic.

Speaker 1
It’s toxic to everybody, but especially in my condition. And I can’t tell them that that just engendering more and more nightmares. And it would be great if I had a patient advocate that would be able to speak for me and would be able to sit for hours and hours on a phone trying to get something arranged and it’s just not possible, not even with paying for it out of pocket. These people don’t exist. And it is very frustrating every step of the way you’re told that your condition doesn’t mean anything and it is indescribable as I try to make myself, as I try to make other people comfortable with me.

Speaker 1
You can’t mention, for example, that you have violent nightmares anymore. They’ll call the cops on you.

Speaker 1
People today are so scared by corporate media that they associate mental health with violence when in fact the mental health are far more likely to be victims of crimes than actually committing the crime. But corporate media doesn’t want to hear that. And it is the more and more I try to make other people comfortable around me, the less credibility I have, the more well spoken I am, the less people think there’s anything wrong. If I keep up appearances, then just what’s the problem? And I’ll try to say, well, how many times do you have to watch your mother or your best friend get chainsawed to death?

Speaker 1
Well, it’s not real. No, it actually feels real. And shock after shock and this has been going on since 1988 with me and it just breaks you down. I probably have less than 4 hours of sleep every night and tell you this is how these professionals, they just want a measurement. How many hours of sleep are you getting?

Speaker 1
And their limited thinking is insane. Well, four or 5 hours, it doesn’t matter. It’s the quality of sleep. It’s all broken up. I’m pacing around at 233 30 in the morning, waking up every other half hour.

Speaker 1
It’s the quality of sleep. But they can’t measure that. They have to rely on your word. And your word doesn’t count. Your word doesn’t mean a damn thing.

Speaker 1
Well, we’re sorry for you, but there’s no at this point I’ve tried literally everything, including, like I said, ECT. And that program when it first came out, using the Apple Watch, which is a dedicated Apple Watch and a dedicated iPhone that goes with it called nightwear. I’ve written a multi part review on YouTube about it that also failed.

Speaker 1
But in the end in the end, my friend has a ton of services he’s going to have measured, respectful, end of life experience, I guess you would call it. But no, I’m going to have to take care of things myself. And it’s tragic, but it’s consistent with the disregard that mental health gets in this country. I’m not sure it’s that much better anywhere else, and I don’t have any suggestions other than fund, but it’s all about money, and so I just don’t especially Intermountain. They’re an incredibly toxic group, incredibly damaging to mental health people.

Speaker 1
And you can read on my website, Thomasfarleyblot.com, what they did to me, how they treated me. I think a real fundamental problem in healthcare is how the line personnel, or the people responding to their Twitter and social accounts have no idea what duty of care means. We are patients first and then customers. This is not a typical industry where you have a customer. No, we’re patients first.

Speaker 1
When you extend the duty of care, if you have to explain what duty of care means to somebody picking up the phone, they need some real training or they need some days in the hospital tending to patients. Once you accept the duty of care, again, it’s just not my dad was a brilliant physician, brilliant doctor, and his colleagues were all well mannered, neat, professional, all of them caring. And they accepted the responsibility for a patient once they took them on. And once a system takes them on, like Inner Mountain or Kaiser or what have you, that duty of care is extended. That umbrella applies to everybody under their name.

Speaker 1
Well, that’s enough for now. I wish I could give you some hope, but there really isn’t any. Not at least for people with my condition. And I think that they would actually prefer a lot of us just to die off so they don’t have to deal with them. I think that’s what’s going on with a lot of the homeless, with mental health problems.

Speaker 1
It’s just get these people off the books and we can go back to treating people for just anxiety and depression and everybody else is on their own.

Speaker 1
But if you know more about the subject, let me know. But there’s no dignity in this, not for people with mental health.

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These Are the People I Deal With

I don’t expect anyone to read this except for search. And I don’t expect anyone to sympathize with my complaints, either, because this is the way the world is arranged. I’ve was raised to be a nice person but there are too many mean people to overcome. This is not something I can win. And, given my constant nightmares since 1988, not something I can cope with.

 

[00:00:03.650]
This weekend at a community picnic, I was introduced to an old cowboy who asked me what I did for work. I told him that I work part time online, at which point the conversation quickly drifted south because of him. He told me that the greatest computer was between our two ears, the human brain. And I said, I agree with that.

[00:00:39.770]
He then went on with a whole series of statements and questions that were aggressively going after. I think I think when I start talking about computers and what I do online, it’s so far out of reach of most people that they think that I’m trying to be smarter than them, or somehow they feel inferior. I think that’s a great deal of it. They have an inferiority complex to anybody that’s working with computers. They act as if I’m trying to prove that I’m smarter than them, when in fact, I usually don’t start the conversation at all because I’m so far out of reach with what I’m doing, with what most other people do that it’s not even worth bothering to talk about.

[00:01:31.860]
Like all of the work that I’m doing with AI and Chat right now. And it’s very discouraging because I had a friend say to me recently that it was possibly economic, because not everybody can afford a computer or the resources that I have, and that’s not really the case at all. I should probably stop at this point and refresh everyone’s memory that early on, before the Internet went commercial, back in about 94, 95, with the advent of Mosaic. Mosaic was the first graphical based Internet browser that you could see images with that became relatable to people. Images provided a boost to advertising, but librarians had been on computerizing, their catalog, card catalogs, for years before.

[00:02:42.790]
And so when personal computers came out, they started populating libraries with them. Especially, really around 84, when IBM came out with its own personal computer for the masses. There was this Charlie Chaplin advertising campaign that was hugely successful. But years before, Apple had been trying really, really hard to place computers in the school to get these lucrative contracts, and they did a good job. They started about 1980 with the Apple II.

[00:03:18.270]
So by the end of the 80s, computers were basically in every library and school. And so everyone’s had an opportunity since then to use computers in one way or another. Night school classes, adult education classes since really the late 80s, early ninety s. And I’ve actually been on computers since 1978. Over 40 years.

[00:03:46.230]
Everybody’s had a chance. But an idiot like this that I was talking to, he doesn’t want to go to the library. I’m sure he hasn’t been to the library in decades. He probably can’t remember when he checked out a library book last. I have many computers.

[00:04:02.350]
I think I have two desktops, two laptops, two tablets. I also have a library card from Pahrump. A library card from Goldfield and a library card from Tonopah. And I am in those libraries, actively. I’m checking out books.

[00:04:22.130]
All of those libraries have a computer. I think it’s just laziness on most people’s part and not having an interest. It’s easier to put down somebody for what they do than to ask about it or just say simply nothing at all. These are the people that drive me crazy. There’s so much amazing stuff going on and I don’t mind if they’re not interested, but it’s the librarians that I’m infuriated with.

[00:04:53.090]
They’re the gatekeepers in education and they don’t want to know about Chat or AI. So it’s not really economic. It is a deliberate decision on many people’s part not to engage, not to learn, to let the things go by. And people that are actually interested, that are burning to create, that are trying new things, that are experimenting with new things, those are people that are something to be put down on because I think it might remind them of how little they want to know, how content they are with their own little world. And that’s fine as long as you don’t go out and bully people or put people down.

[00:05:38.570]
This is the way I can make some money. I can make this money part time. I’m doing a good service and yet I have people people commenting who don’t even know the basics of writing and business writing.

[00:05:55.970]
Self-sustaining freelance writers are maybe four or 5% of the population. That’s it. Everybody else is doing a second 3rd, 4th job to enable their hobby or their passion the and as far as nonfiction writing goes, nobody understands that. As far as business SEO, there’s nobody that I know, haven’t known for a couple of decades that has any idea of what I’m doing. But if they ask, if I try to explain, it’s just an immediate putting down of what I do.

[00:06:40.750]
It’s just this prejudice against the unknown, which is really the root cause. If you don’t know something, if somebody knows something you don’t, you don’t want to hear it. Instead of asking questions about it or letting it go, they want to put it down because they’re bullies. That’s all they can do. They’re trolls.

[00:06:59.990]
And maybe it reminds them of the fact that they’re dead to the world, that they have no interest in inquiry.

[00:07:10.170]
Anyway, I just wanted to put down what I have to deal with almost every day in my effort to be creative. I really have to keep it hidden. Can’t discuss it because it’s like we’re going back to the Dark Ages. One idiot, in fact, who’s in charge of something historical, he was talking about computer literacy, computer literacy in such a way that I asked him this:

[00:07:43.400]
You’re not holding out computer illiteracy as a point of pride, are you? And this guy’s a former engineer and he thought about it and said, that’s a good question, actually. I am. This is a living, breathing, talking luddite. He doesn’t want to learn.

[00:08:02.380]
He wants to put down people for learning. We’re going to go back 300 years into the Dark Ages when people were prosecuted and killed for trying to learn things, for trying to advance science. We’re going to try to discredit them. Or Mao’s Cultural Revolution, in which anybody with higher learning or higher ambition was killed. That’s what we’re going to get.

[00:08:29.090]
We’re going to go back to the Dark Ages and then we’re going to take 300 years to come back again. At the end of the Dark Ages, they had to reinvent all the math that the Greeks had done, what, 1500 or  2000 years before, because people were criticized and killed for trying to learn new things. And now we have people writing about chat and AI who don’t actually use it, haven’t experimented with it, but don’t want to learn. They just want to put it down. So it’s frustrating, but that’s the world we live in.

 

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Pushing Pixels Into Video

I’m working on my first video private commission. I’m also accepting comments on same. Two possible openings. The music is slow and deliberately chosen. It’s the music from the opening of Butch Cassidy and the Sundance Kid; I think many people may remember it somewhat subconsciously which is what I want. It now needs the chattering film projector sound that you hear in the movie. Or does it.